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Cancer of the Cervix - Psychology

Contents:

bulletWhat is Psychology?
bulletWhat is Psychiatry?
bulletPsychology/Psychiatry and cancer of the Cervix
bulletWhat are the issues for gynaecological cancer patients?
bulletCancer of the Cervix in particular
bulletHow can psychology/ psychiatry help?
bulletWhat are the issues for Carers and Families?
bulletHow Can Psychology/Psychiatry Help Carers And Families?
bulletHow can Carers and Families help Patients?
bullet Further Information

What is Psychology?

What is Psychiatry?

Psychiatry is an area of medical specialty which is concerned with an understanding of the emotional and social experiences which shape behaviour and coping, as well as the assessment and treatment of illnesses such as depression and anxiety. In settings such as medical or surgery units, a sub-specialty of psychiatry (known as consultation-liaison psychiatry) offers expertise in assisting patients adjusting to illness or disability, including emotional support for family members where necessary. Psychiatrists are medically qualified doctors, so are able to recognise the medical aspects of care which affect emotional responses.

Psychology/Psychiatry and Cancer of the Cervix

Health care is becoming increasingly focused on the "whole person", rather than just particular aspects of disease or disability. There is growing evidence that emotional issues affect the ways in which people cope with serious illness, and also that there are effective ways to reduce distress, and improve coping. Consultation-liaison psychiatry offers expert advice about the ways in which the personal background of an individual person may influence their coping or behaviour, and practical ways all members of the treatment team may help the patient and her family. A key issue to which consultation-liaison psychiatry can contribute is in communication between health professionals and patients, as there is growing evidence about the best ways to give information to help patients make informed decisions, and to reduce distress when the news is difficult. Depression is a common complication of any serious illness, and consultation-liaison psychiatry can offer treatments which are usually highly effective.

What are the issues for gynaecological cancer patients?

The diagnosis of cancer is often a devastating blow. The diagnosis may have been quite unexpected, and there is shock and disbelief, and apprehension about what this means. All women diagnosed with cancer do wonder, even if only briefly, if they might die. 

Treatment for gynaecological cancer usually involves surgery and often chemotherapy and radiotherapy. All of these treatments affect the woman emotionally as well as physically. Many women are very conscious that a very private part of their body is affected, and are concerned about their femininity and how this will affect their sex life. Having a hysterectomy is a concern for many women even if they consider their family complete, as they see their uterus as defining their status as a woman. Becoming menopausal following treatment may be associated with distress about aging, and concerns about sex drive. 

Even following successful treatment, many women find that they remain somewhat anxious. They are concerned that the cancer could return, and their confidence has often been affected. It may take some time for the woman to feel that she is "on top of things" again. Some women may become depressed following diagnosis and treatment for cancer. Women may be reluctant to seek help, feeling that being "down" is normal after such an experience. Women may also feel reluctant to concern their doctors about these feelings, as they feel that this is selfish or a sign of weakness. Increasingly we are seeing that treating the whole person is important and women should feel confident about expressing concerns about how they are coping emotionally.

Cancer of the Cervix in particular

Cervical cancer may affect younger women who have not had children, or who have not yet completed their family. Having a hysterectomy, which is often part of the treatment for this cancer, can cause major feelings of loss for this reason, and also because some women feel it causes a loss of femininity. 

In addition, there may be the need for radiotherapy which may affect the tissues of the vagina, and be associated with difficulties in sexual adjustment. Partners may be concerned that resumption of sexual activity will be painful or dangerous for the woman, and avoid contact, and this may make the woman feel that she is no longer attractive. Women who are not in a relationship may feel anxious and concerned about their ability to establish new relationships.

If the woman becomes depressed, there are very effective treatments available. The usual treatment would be supportive counselling. Sometimes medication is also required.

How can psychology/psychiatry help?

In general the techniques involve efforts to enhance the woman's sense of control over a stressful situation. Provision of information is crucial. Not only does this allow the woman to participate in making an informed decision about treatment, but also allows her to consider the issues which may arise for her family in the future. The woman may have false perceptions about her condition, and addressing these is important in improving her emotional adjustment. Providing an opportunity for the woman to express her emotional concerns, and offering ongoing support is usually helpful. A key aspect is acknowledging the grief and loss inherent in the diagnosis of cancer. 

For some women, there is guilt about not having sought treatment earlier, and many women are very distressed and concerned about their family. Talking about these concerns, and exploring how realistic these ideas are, is generally helpful. Every woman is different, and it is vital that her unique strengths and concerns are treated with respect. In order to assist each woman it is usually necessary to build a picture of the type of person she is, including the experiences shaping her personality and view of the world. In addition, consideration of her social relationships and responsibilities provides an insight into the practical issues she is facing in addition to the cancer. It is vital to give the woman a sense of confidence that her concerns are understood, and to instil a sense of hope about her ability to cope.

All psychological treatments are aimed at the particular woman and her special concerns. Although there may be similarities in the emotional concerns for some women because of the type of cancer for which they have been treated, there are unique qualities of each woman which make it difficult to generalise. It is a case of this particular woman who has this cancer, rather than the particular cancer the woman has.

What are the issues for Carers and Families?

Many of the issues are similar to those for the women themselves. There may be concerns about the woman's health and the fear that she could die. Families often find it hard to talk about issues such as this, and often avoid any emotionally laden subject. It is very difficult to stand by and see someone about whom you care undergo treatment for cancer, especially when you feel helpless. There is good evidence that many family members are severely stressed and anxious, or clinically depressed, although few seek professional help. Many feel that they have to be strong to help the woman cope with treatment, and that to ask for help for themselves would be a sign of weakness. Partners are often afraid of losing emotional control, and feel particularly helpless if the woman is upset, so urge her to "think positive". This is not always helpful for the woman - in general it is better to share thoughts and feelings even if they are painful. The need for appropriate information is significant for families, and affects how they cope. As for the woman herself, the coping and relationships within the family before the diagnosis of cancer will influence adjustment during treatment.

How Can Psychology/Psychiatry Help Carers And Families?

The techniques are broadly as described for woman themselves. One of the common perceptions of family members (and women themselves) is that they can "get back to normal" after the treatment, so they devote time and energy into trying to cope as before. Giving information about the common patterns of responses, and helping family members to consider that things will be different is vital. Facing the enormity of what has happened allows family members and carers to adjust - things are not necessarily worse than before, but they are different. Sometimes families say that the experience of cancer has brought them closer together and allowed them to value the things that really matter.

In cases where there have been problems in the relationships it is often useful to have some counselling sessions with the couple, or the whole family. During such sessions, there is an opportunity to explore concerns, to receive information about common concerns of families in which a member has cancer, and to discuss needs and expectations. Improving the openness of communication often means that family members feel less tense, and the chance to share even the sad feelings results in greater closeness.

 

How can Carers and Families help Patients?

Respect the woman's right to make her own choices, and allow her the chance to talk about how she feels. Many women become frustrated when they express concerns and their partner or other family members offer comments or reassurance. Sometimes the woman just wants to "sound off" without anyone offering an opinion. Asking her what she wants both from a practical point of view, and in terms of emotional support is vital. Some women don't want people around them to talk about the cancer, some do. Some want to be positive, others want to be able to say they feel scared without being told to "put on a brave face". You will only find out if you ask. Offering to attend clinical appointments, helping her access information, and indicating your ongoing commitment and support are important. Allowing the woman to talk about concerns about attractiveness and sexuality is very helpful. Even if you don't feel that the treatment makes a big difference to her appearance, it is important for her to express how she feels about it. Telling her "it doesn't bother me" may be an effort to reassure her, but some women feel that such a comment trivialises their concerns.

Further Information

The following web site has useful information on the emotional aspects of gynaecological cancer:: http://oncolink.upenn.edu/

In addition, the Journal "Psycho-oncology" published by Wiley includes publications about the emotional aspects of many cancers.

The Queensland Cancer Fund (QCF) has information booklets about the various cancers. They also have a publication titled "Understanding emotions" There are specific publications available from QCF written by Lesley Schover about the sexual aspects of cancer.

 

Dr Jane Turner MB,BS; F.R.A.N.Z.C.P.
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© 2003 Gynaecological Cancer Society .
Contact Mr John Gower Chief Executive,
Gynaecological Cancer Society, Room 2 Floor H,
Clinical Sciences Building. Royal Brisbane & Womens Hospital, Herston, Queensland, 4029
Phone: +61 7 3365 5216 Fax: +61 7 3635 5216
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