Whereas the medical professional seeks to cure and to alleviate pain,
the chaplain/pastoral carer seeks to bring peace, acceptance, truth and
realistic hope, allowing the innermost part of the patient to attain a
balance with the external manifestations of illness. In other words, if
the inner spiritual harmony and balance is in place, what life then offers
in the form of treatments through doctors, nurses and other health
professionals can be accepted and integrated peacefully. This in turn may
well be greatly conducive to better and more immediate healing, or
alternatively, a more peaceful process of life's ending.
In relation to gynaecological cancer matters, all chaplains would need to draw on their attending and listening skills in helping unfold the woman's underlying story, as this is a sensitive and delicate issue for her to reveal. Her role as nurturer, family
carer, worker, household manager and even her wifely role are all on hold.
Women of different ages may grieve for different reasons. For a younger woman, grief may be about the loss of the capability to bear children; for an older woman that she can have no more children; for a middle-aged woman that the physical aspects of her person are either inactive or even removed - all of these issues might be huge parts of the grief she may not yet feel in her frozen state. The woman can refuse to address her own grief in the concern she shows towards her partner and their relationship and to her family. This is all part of the great grief she has.
The chaplain/pastoral carer needs to allow time and sensitive, empathic listening for these deep feelings to surface before fears and options can be addressed. A further issue for the chaplain/pastoral career is to be aware of the partner's issues and the family concerns. The partner needs to verbalise grief, anxiety, stress, feelings of helplessness, and to be allowed to be part of the partner's pain, otherwise it may result in emotional detachment and failure to face the problems.
The same unhurried care needs to be extended to the family - the whole family: mother, father, children and the extended family, all need to be listened to as they define their new roles, becoming comfortable in them as far as they are able.
The pastoral carer needs to be aware and help others to an awareness of the many grief issues that are part of the concerns of the patient. Books by Elizabeth
Kubler-Ross detail many grief issues; Abraham Maslow's work discusses the issues that concern people when their life structures seem to topple around them; Erik Erikson discusses life's stages and the concerns of a person in each of them; and William Worden details the tasks of grief. Details for these and other materials can be found in the 'further information' section below. If the whole team is aware of the specific approach used for the individual needs of a patient then a greater cohesion and ease can develop in the team.
Gynaecological cancer often results in invasive treatment of the most
private areas of a woman's body. She needs to call on all her coping
skills to handle the situation and to realise that, while outwardly her
life can continue without anyone beyond her immediate circle knowing what
has happened to her, her big hurdle may be in accepting her 'new' or
'treated' self. She needs to allow her body time to recover as much health
as possible, and to work through with her partner what this illness may
mean to them both.
Loneliness, fear, feeling useless and used up, pain and discomfort, and
the disengaging of her emotional responses to invasive treatments are all
natural reactions. Other concerns include the personal grief felt over
what some women perceive as the essential loss of womanhood; issues of
mortality; concern over work situations and the negative effect on her
career; and issues of the care of her partner, children, household pets,
her home or her wider family. These issues often take precedence over her
own personal care, and while all are real concerns, they are often used as
a way of refusing to address her own grief. The sensitivity shown by
chaplains to these issues can reflect them back to the patient, so options
can be discussed - one by one.
Always dependent on the stage the illness has reached, it is important
that family members be engaged in giving support to the patient, adapting
to her moods and needs, and developing tolerance all round. The pastoral-carer can be of great assistance here. The
pastoral-carer will
encourage family members to speak naturally and openly, and, without
dwelling too much on the negatives, ensure that the extra needs of the
patient are met. This may involve resolving any legal difficulties she
might have (e.g. updating her will); resolving any differences between
family members, relatives and friends; and bringing closure to certain
parts of her life. If the condition is terminal, other issues need to be
addressed. These may include talking about death; getting the family to
recognise the process and naturalness of dying, and the naturalness of
discussing funeral arrangements. The patient might like to be involved in
this discussion, as it relates to the type of celebration and closure to
her life.
The woman's partner will also have various issues and family concerns
that must be dealt with. There may be feelings of grief, anxiety,
stress, and
helplessness, and a need to be part of the partner's pain. These issues
can be resolved with the assistance of a chaplain, otherwise it may result
in emotional detachment and a failure to face the problems.
In-service sessions within hospitals, the internet, e-mail, fax, and phone are all part of the information highway available today for patients, carers and all needing care and information. An awareness of and participation in the many GRIEF COURSES offered throughout the city, state and country are options that can be picked up even before one becomes involved in caring for gynaecological and cancer patients. Such participation would help develop an understanding of grief and the help available in working towards its resolution. Even integrating a grief weekend into one's yearly programme would have great benefits in caring holistically for the patient and her family. Any of the major Hospitals through their Chaplaincy /Pastoral Care Departments would be able to give information about courses that may be available. One Institute of Learning that offers grief courses three or four times a year is the Academy for Chaplaincy and Community Ministries, with the Postal Address as
The Registrar
Academy for Chaplaincy and Community Ministries
P.O. Box 5868
WEST END. Q. 4101
Telephone: (07) 3255 2112 Fax: (07) 3255 2113
Books:
Erikson, E. (1982) "The Life Cycle Completed", New York: WW Norton.
Erikson, E. (1976) "Identity, Youth and Crisis", New York: Harper.
Kubler-Ross, E. (1978) "On Death and Dying", London: Tavostock
Publishing.
Maslow, A. (1962) "Towards a Psychology of Being", Princeton: D van
Nostrand, Inc.
Worden, J.W. "Grief Counselling and Grief Therapy", New York: Springer Publishing Company.
Rita Steptoe,
Chaplain
Chairperson Chaplaincy Department
Royal Brisbane Hospitals
June Loxton
Chaplain
Royal Womens Hospital